Friday, May 23, 2014

The beginning...

This blog was created to share my journey and to provide hope for others going through their own struggles with food sensitivities and allergies.  Throughout the last 6 years God has been right by my side and is the only reason I have gained the knowledge I have.  He has used friends, co-workers, former patients, and even complete strangers to get His message to me, which is: this is a lifestyle change for my family and me, He has a plan for my life through this experience, and I am not alone in my struggles.  Below is the beginning of my story.

June 2, 2013, I was tested for food allergies and sensitivities as a last resort to symptoms I had been having for a few years that had become increasingly worse over time.   My food bloodwork came back showing multiple food allergies and sensitivities. But to understand how we even got to this point of knowing that food allergy testing was the direction we needed to go in, I must give you some history.

As long as I can remember, I have always had sensitivity to peanuts.  Of course, I LOVED peanut butter.  I have fond memories of eating peanut butter and jelly sandwiches as a kid.  However, I also remember always battling fever blisters.  I applied topical creams. I swallowed Lysine tablets.  I also had prescription capsules when the fever blisters were really bad.  My dad has been cursed with the love of peanuts and fever blisters, also.  So I thought it was heredity and just something I would have to learn to deal with all my life-just watch my peanut intake and if I ate too much, then treat the fever blisters.

Then in April 2008, my daughter, McKay was born.  That is when Brian and my world changed forever...especially when McKay had "colic" for the first 7 months of her life.  I suspected something else was going on, as I was breastfeeding (and supplementing with formula) and could tell a slight difference in McKay's reaction to different things I ate and drank.  I had already cut out dairy and was drinking soy milk but that was not enough and I didn't know what else to do.  Brian and I had tried just about every formula known to man and none of them gave McKay complete relief.  Brian and I took shifts every night for months, walking laps in our house with McKay strapped into our front baby carrier with her leaning forward so pressure was on her tummy.  Until 6 months of age, we swaddled her so tight we thought she'd pop (but she absolutely loved it).  While swaddled, we would put a homemade heated rice sock on McKay's abdomen while we rocked and bounced her vigorously in the rocking chair with the white noise blasting from the computer.  This was our life.  Happy baby during the day and a screaming miserable baby at night.  I just knew in my heart it wasn't colic but the doctors would not listen to me and I was lost and felt defeated.  Thank God we had found our liquid gold in levsin drops (we affectionately called "baby crack") when she was 3.5 months old.  Brian and I religiously gave McKay the "baby crack" every night to help ease her pains and her screaming. By 7 months, we had found our solution in a hypoallergenic baby formula as my breastmilk had dried up (due to undiagnosed hypothyroidism).  Within two days of giving her this new formula, most of McKay's symptoms disappeared.  Within a week she was a new child.  It was a miracle!!  Then we began seeing problems when we introduced solid foods into her little system at a later date.

When McKay was 12 months old, we found the most wonderful doctor who began working with us and I had a glimmer of hope.  Around 18 months old McKay was officially diagnosed with food sensitivities.  Brian and I had been introduced to a whole new world and it was more expensive, confusing and mentally exhausting than we had anticipated.  We managed, but never really mastered it because one year later when McKay was retested many of her sensitivities had changed and she could now eat things she had not been able to eat before; however, at the same time, she could no longer eat many things she had been allowed to eat a year earlier.  Everything seemed topsy-turvy.  I was so confused and frustrated.  Brian had all but lost what little faith he had in this whole food sensitivity diagnosis and I was beginning to doubt it, too.  The dietary counselor from the lab had called it Leaky Gut Syndrome.  We were now expecting our son, Mason when we received this news and it was quite overwhelming.  I felt so alone and lost.  However, I trudged on and continued to follow the doctor's suggestions for McKay's new diet while researching as much as I could on Leaky Gut Syndrome and food sensitivities.

Then Mason came along in December 2010 and quickly began showing some signs of food sensitivities.  Of-course, Mason's trigger foods were different from McKay's.  Mason was exclusively breastfed, so I changed my diet to attempt to meet his needs.  However, because we did not have him tested, it was still difficult to tell what the true sensitivities were.  (At the time, McKay's doctor could not see Mason as a patient until he turned one year old).  So, we did the best we could from the knowledge we had gained through the previous years with McKay.  

 Now we move foreword to last June 2013, we needed to have McKay retested and have Mason tested for the first time as we were having new symptoms from different foods, once again.  I was at my all time lowest in feeling the worst I had ever felt in my life.  I had just finished my first year as a stay-at-home-mom and had homeschooled McKay in pre-K 4.  I was exhausted, napped at least two times a day, suffered daily headaches along with periodic migraines.  No energy to exercise outside of chasing my kiddos around.  My joints ached and were stiff and swollen and nothing I did changed it.  My fingers were so swollen I could no longer wear my wedding band. I craved sugar like a wild animal and would accept it in any shape or form whether it be in sweets, carbs, or fruits.  I was so irritable and always felt like I could never lose weight.  I had been on weight watchers for 4 months and had lost no more than 5 lbs that I would yo-yo with and eventually ended up gaining more than my original starting weight.  (I had tried Advocare the summer of 2012 and had felt some success in my symptoms.  However, I did not loose more that 7 lbs and I began to see the weight come back on when I slowly re-introduced gluten and dairy after the 24-day challenge ended.  But within those 24 days, I had seen a different side of me.  I could wear my wedding band most days, I had tons of energy and was enjoying exercising.)  

In May of 2013, I had been tested for all sorts of illness (lyme disease, Mono, you name it, they tested me for it).  However, when my test results from my PCP came back as 'normal," I truly felt like I had hit a brick wall.  After the kids food sensitivities results came back, I told Brian I was going to go on the yeast-free diet with the kids and see if that helped.  That is when Brian suggested I have the food allergy test.  So my plan was to get tested ASAP, and in the meantime begin the yeast-free diet with the kids, and wait for my results to come back in 2-3 weeks.  

My results came back as having allergies to the following foods: 
Beef
Chicken
Egg White
Cow's Milk
Orange
Peanut
Soybean
Tomato
Wheat

I also tested positive for multiple food sensitivities, yeast being one of the highest.  But my doctor wanted me to initially focus on removing all the allergies as well as yeast.  So, a new chapter in my life began with new challenges and new successes.   We finally had a name for my aliments and I was so relieved.  Now it was time to begin healing and that is just what I am doing, through imperfect progress.  :)